This video was played the night of the Gala. Wanted to share with all of my friends and family.
Wednesday, November 21, 2012
2012 Eastern Iowa JDRF Fund-A-Cure Video
This video was played the night of the Gala. Wanted to share with all of my friends and family.
Friday, November 16, 2012
The Fighter
Lately I have been inspired by the song "The Fighter" by the Gym Class Heroes. Anyone that has ever heard this song, knows exactly what I am talking about. If you haven't heard the song, I suggest you go to You Tube and watch the video, which offers more inspiration.
Micheala introduced me to this song. Yes, you read right. My seven year old daughter introduced me to this song. She heard it on the radio and was singing it one day. She mentioned that she would like to use this song as her song for her JDRF video this year. So I gave it a listen and decided right a way that this was the perfect song. The song talks about the Olympic gymnastic from the Bronx who overcame difficult obstacles in his life to make it to the 2012 Olympics. Truly inspirational.
This year's Pump Princess JDRF campaign is taking a different perspective. In the past, our videos have shown the struggles that come with being a T1D accompanied with a slow sad song, geared to pull at the viewers heart strings a bit. This year, we want people to know that we are in this fight. We are stepping in the ring with the heavyweight know as T1D, standing toe-to-toe with it and preparing to knock it out.
I love this song because it really describes Micheala....a fighter.
Tonight, Micheala was invited to spend the night with a friend and unfortunately she is not able to do this. She is only a week and a half into wearing her new insulin pump and we are still getting into the swing of regulating her sugars and working the new pump. This was a big disappointment for Micheala, but it came down to a night of fun with a friend or keeping her alive for more fun opportunities in the future. Her disappointment will pass, but it still stings. Diabetes has landed the first punch in this fight.
The past 3 years have been full of punches landed by diabetes. Different hospitalizations, missed sleepovers, timeouts while playing with friends and a lot of sleepless nights. Despite the many blows landed by diabetes, Micheala keeps getting back up. She rolls with the punches. She is small but she is strong. She knows that if she can keep getting up after each punch, that she will eventually land that devastating blow on Diabetes. However, each blow leaves her scarred and weaker.
Every time diabetes lands a punch, it starts to raise questions of doubt and hopelessness. Is this fight really worth fighting? Am I matched up against an opponent that bigger than me? If diabetes is going to beat me, then why even fight back? Am I going to lose this fight? Confidence fades with every blow, desperation sets in, the will to fight back starts to slowly become vacant.
Micheala keeps fighting. She gets angry and fights back with even more confidence. She knows that she has people in her corner doing everything they can to keep her in this fight. She knows that she has the support from friends, family and strangers. She knows that her T1D friends are counting on her to stay strong. Like the song states....Micheala is a fighter.
I am proud of Micheala. There was a point in my life while I was standing in the ring with diabetes, that I wanted to stay down after a devastating blow. My heart attack at the age of 30 took everything out of me. Had it not been the support of my family standing next to my bed as I battled back, I may have given up. I wanted to give up, but I couldn't give up. The people in my corner were not ready to throw in the towel, but I was. Had I thrown in the towel, I wouldn't be here today fighting this battle with Micheala. Sometimes perspective is a bitch and it slaps you right in the face....this is one of those moments.
I am ready to starting landing some punches on diabetes and we already have started working the "jabs". The awareness and funds that we have raised over the past 3 years for JDRF is making a difference in this fight. In terms of research, or researchers are very close to having the artificial pancreas ready to go. Although there is no date for the artificial pancreas, I know that it is near. This is not a cure for diabetes, but this will make kids with diabetes have the ability to live a normal life. Studies are being funded with the money that is being raised to find out the answers to the "whys" and the "hows" with diabetes. Money being raised is bringing advancements in the Cure, Treat and Prevention of diabetes. We are landing blows and fighting back.
Diabetes has met it's match with Micheala. She is little, she is cute but she is a fighter.
With all honesty, I have visions of this fight ending with Micheala standing in the middle of the ring with her hands raised in victory. I can see that and fight for that. That day is coming.
I get laughed at when I share that vision. If it hasn't happened yet, it will never happen....bullshit, not if we have anything to do with it. I can't just sit around and watch my daughter continuously get knocked down by diabetes. I'm tired of holding my breathe every time she gets knocked down, hoping she will get back up. I cannot accept the fact that she is outmatched, an underdog, in this fight and has no chance of winning. She will win...she is a fighter.
Who is your fighter or what are you fighting for? When you get knocked down, are you getting back up? Finally, when you walk into a room, do people turn and say:
"HERE COMES A FIGHTER!"
I blog because I want Micheala to someday read and realize her own strength and all of the great things she is doing for T1D research. Micheala, at this point, we have made it through 3 rounds of this fight and almost through the 4th. You are strong, you are my hero and you are a FIGHTER!
Love you sweetheart.
Micheala introduced me to this song. Yes, you read right. My seven year old daughter introduced me to this song. She heard it on the radio and was singing it one day. She mentioned that she would like to use this song as her song for her JDRF video this year. So I gave it a listen and decided right a way that this was the perfect song. The song talks about the Olympic gymnastic from the Bronx who overcame difficult obstacles in his life to make it to the 2012 Olympics. Truly inspirational.
This year's Pump Princess JDRF campaign is taking a different perspective. In the past, our videos have shown the struggles that come with being a T1D accompanied with a slow sad song, geared to pull at the viewers heart strings a bit. This year, we want people to know that we are in this fight. We are stepping in the ring with the heavyweight know as T1D, standing toe-to-toe with it and preparing to knock it out.
I love this song because it really describes Micheala....a fighter.
Tonight, Micheala was invited to spend the night with a friend and unfortunately she is not able to do this. She is only a week and a half into wearing her new insulin pump and we are still getting into the swing of regulating her sugars and working the new pump. This was a big disappointment for Micheala, but it came down to a night of fun with a friend or keeping her alive for more fun opportunities in the future. Her disappointment will pass, but it still stings. Diabetes has landed the first punch in this fight.
The past 3 years have been full of punches landed by diabetes. Different hospitalizations, missed sleepovers, timeouts while playing with friends and a lot of sleepless nights. Despite the many blows landed by diabetes, Micheala keeps getting back up. She rolls with the punches. She is small but she is strong. She knows that if she can keep getting up after each punch, that she will eventually land that devastating blow on Diabetes. However, each blow leaves her scarred and weaker.
Every time diabetes lands a punch, it starts to raise questions of doubt and hopelessness. Is this fight really worth fighting? Am I matched up against an opponent that bigger than me? If diabetes is going to beat me, then why even fight back? Am I going to lose this fight? Confidence fades with every blow, desperation sets in, the will to fight back starts to slowly become vacant.
Micheala keeps fighting. She gets angry and fights back with even more confidence. She knows that she has people in her corner doing everything they can to keep her in this fight. She knows that she has the support from friends, family and strangers. She knows that her T1D friends are counting on her to stay strong. Like the song states....Micheala is a fighter.
I am proud of Micheala. There was a point in my life while I was standing in the ring with diabetes, that I wanted to stay down after a devastating blow. My heart attack at the age of 30 took everything out of me. Had it not been the support of my family standing next to my bed as I battled back, I may have given up. I wanted to give up, but I couldn't give up. The people in my corner were not ready to throw in the towel, but I was. Had I thrown in the towel, I wouldn't be here today fighting this battle with Micheala. Sometimes perspective is a bitch and it slaps you right in the face....this is one of those moments.
I am ready to starting landing some punches on diabetes and we already have started working the "jabs". The awareness and funds that we have raised over the past 3 years for JDRF is making a difference in this fight. In terms of research, or researchers are very close to having the artificial pancreas ready to go. Although there is no date for the artificial pancreas, I know that it is near. This is not a cure for diabetes, but this will make kids with diabetes have the ability to live a normal life. Studies are being funded with the money that is being raised to find out the answers to the "whys" and the "hows" with diabetes. Money being raised is bringing advancements in the Cure, Treat and Prevention of diabetes. We are landing blows and fighting back.
Diabetes has met it's match with Micheala. She is little, she is cute but she is a fighter.
With all honesty, I have visions of this fight ending with Micheala standing in the middle of the ring with her hands raised in victory. I can see that and fight for that. That day is coming.
I get laughed at when I share that vision. If it hasn't happened yet, it will never happen....bullshit, not if we have anything to do with it. I can't just sit around and watch my daughter continuously get knocked down by diabetes. I'm tired of holding my breathe every time she gets knocked down, hoping she will get back up. I cannot accept the fact that she is outmatched, an underdog, in this fight and has no chance of winning. She will win...she is a fighter.
Who is your fighter or what are you fighting for? When you get knocked down, are you getting back up? Finally, when you walk into a room, do people turn and say:
"HERE COMES A FIGHTER!"
I blog because I want Micheala to someday read and realize her own strength and all of the great things she is doing for T1D research. Micheala, at this point, we have made it through 3 rounds of this fight and almost through the 4th. You are strong, you are my hero and you are a FIGHTER!
Love you sweetheart.
Thursday, November 8, 2012
A Ton Of Bricks
On Wednesday I was down at the University of Iowa Fieldhouse at the U of I Wellness Fair. I was working a booth for JDRF primarily to raise awareness for T1D. It gave me the opportunity to meet with all sorts of people and explain to them what JDRF is about and what we fund. Anytime JDRF has the opportunity to promote our mission, it is always a win for us.
Shortly before the noon hour, an older woman approached my booth. We started with the usually greeting, but then she started to ask questions about JDRF. Her questions were very specific, which started to make me wonder or become curious about her connection to T1D. She didn't appear to be a nurse, or at least she wasn't wearing a hospital ID badge like most of the wellness fair goers. Curiosity took over and so I asked her about her connection to T1D.
She started to tell me that she had a grandson that was a T1D. The story was short and to the point as she then told me that a few years back they lost her grandson to T1D at the age of 4. She described him as a very sick young man that just didn't have any fight left in him. It still seemed very fresh in her mind, although she didn't show any emotion. She then told me that she appreciates everything that we (JDRF) do to help find a cure for diabetes. I explained to her that JDRF is focused on finding the cure, but also discovering better ways to treat and funding research to someday prevent T1D. She wished me a good day and went on to the next booth.
The rapid flow of people at the fair prevented me from really processing what this woman had shared with me. Her story did stick in my mind but later on that night, it hit me like a ton of bricks.
Micheala was 4 years old when she was diagnosed.
I couldn't stop thinking about the reality or possibility of me being that person sharing that story at the wellness fair to a JDRF staff member. I can honestly say that I don't worry about my daughter falling victim to diabetes on a daily basis. I don't because I have faith in the things that we do to take care of her. However, there is always that possibility that just doesn't ever completely vacate my mind.
One bad string of events that go wrong with Micheala can make her very sick. The common cold and flu often times has Heather and I on "red alert" with Micheala. She is 7 years old and little; it doesn't take much to wipe her out. That's just reality.
I also thought long and hard about purpose. Parents and grandparents should not have to deal with the pre-mature passing of their T1D loved ones. I started thinking about the things that I am doing and really questioning if it was "enough". What else can be done that is not being done right now?
I don't think of T1D is a death sentence. I encourage other T1Ds not to think of T1D as a death sentence either. Death sentences have a pre-determined ending, which in this case would mean that T1D wins and we are the victims. T1D is more of a temporary situation. Yes we have T1D now, but the research is going to provide us with a cure someday...I believe that.
I find it difficult to stomach the fact that I simple do not have enough hours in my day to help the thousands of families that live with T1D in the Eastern Iowa area. That list of families is long and continues to grow....daily. In the month of October I welcomed 15 new families to Eastern Iowa JDRF, and those are just the families we know about. Today I welcomed 2 new families. The families are all the same...they never change...they are T1Ds now and scared as hell. I tell them that things will get better, but do they believe me?
Wednesday hit me like a ton of bricks. I pray every night for the strength to carry those bricks on my back and continue to march forward. Not just for me, Micheala or all the families that are part of Eastern Iowa JDRF, but for that woman and those like her that have loved ones that just couldn't fight any longer. This cure will be for them. A cure will not bring their loved ones back, but it will prevent others from being that stranger across the table at a wellness fair sharing a tragic story in which T1D is the victor.
Shortly before the noon hour, an older woman approached my booth. We started with the usually greeting, but then she started to ask questions about JDRF. Her questions were very specific, which started to make me wonder or become curious about her connection to T1D. She didn't appear to be a nurse, or at least she wasn't wearing a hospital ID badge like most of the wellness fair goers. Curiosity took over and so I asked her about her connection to T1D.
She started to tell me that she had a grandson that was a T1D. The story was short and to the point as she then told me that a few years back they lost her grandson to T1D at the age of 4. She described him as a very sick young man that just didn't have any fight left in him. It still seemed very fresh in her mind, although she didn't show any emotion. She then told me that she appreciates everything that we (JDRF) do to help find a cure for diabetes. I explained to her that JDRF is focused on finding the cure, but also discovering better ways to treat and funding research to someday prevent T1D. She wished me a good day and went on to the next booth.
The rapid flow of people at the fair prevented me from really processing what this woman had shared with me. Her story did stick in my mind but later on that night, it hit me like a ton of bricks.
Micheala was 4 years old when she was diagnosed.
I couldn't stop thinking about the reality or possibility of me being that person sharing that story at the wellness fair to a JDRF staff member. I can honestly say that I don't worry about my daughter falling victim to diabetes on a daily basis. I don't because I have faith in the things that we do to take care of her. However, there is always that possibility that just doesn't ever completely vacate my mind.
One bad string of events that go wrong with Micheala can make her very sick. The common cold and flu often times has Heather and I on "red alert" with Micheala. She is 7 years old and little; it doesn't take much to wipe her out. That's just reality.
I also thought long and hard about purpose. Parents and grandparents should not have to deal with the pre-mature passing of their T1D loved ones. I started thinking about the things that I am doing and really questioning if it was "enough". What else can be done that is not being done right now?
I don't think of T1D is a death sentence. I encourage other T1Ds not to think of T1D as a death sentence either. Death sentences have a pre-determined ending, which in this case would mean that T1D wins and we are the victims. T1D is more of a temporary situation. Yes we have T1D now, but the research is going to provide us with a cure someday...I believe that.
I find it difficult to stomach the fact that I simple do not have enough hours in my day to help the thousands of families that live with T1D in the Eastern Iowa area. That list of families is long and continues to grow....daily. In the month of October I welcomed 15 new families to Eastern Iowa JDRF, and those are just the families we know about. Today I welcomed 2 new families. The families are all the same...they never change...they are T1Ds now and scared as hell. I tell them that things will get better, but do they believe me?
Wednesday hit me like a ton of bricks. I pray every night for the strength to carry those bricks on my back and continue to march forward. Not just for me, Micheala or all the families that are part of Eastern Iowa JDRF, but for that woman and those like her that have loved ones that just couldn't fight any longer. This cure will be for them. A cure will not bring their loved ones back, but it will prevent others from being that stranger across the table at a wellness fair sharing a tragic story in which T1D is the victor.
Saturday, November 3, 2012
Are You Crazy? You're Thankful For That?
November. I have noticed that the latest Facebook craze has been posting something on your wall, every single day, in which you are thankful for in your life. Reading through these posts, I can't help but notice that all of them have the same theme. Family, friends, God and so on. Which I agree, are all very important things and I am very thankful for those things as well. I have made the decision to not participate in this latest facebook craze. I am not defiant, but have chosen not to participate based on my anticipation of the public's perception. That's why I have a blog.
Yes November is highlighted by the ever so popular holiday of Thanksgiving. Not many people know that November is National Diabetes Month. I mention this because it leads into what I am truly thankful for in this life that I am currently living.
I am thankful for having diabetes. More specifically, type 1 diabetes (T1D).
Why in the hell would someone be thankful for a disease that has no cure and will eventually end his life someday?
I think of it like this. By me having T1D, maybe I took the place of some child having this disease. Being an adult, even though it is still very difficult, I am better equip to battle this disease. Many of you have heard me say that I wish that just me having this disease would have filled the quota for diabetes in our household. Unfortunately, that wasn't the case. I am also thankful for this disease because I feel as if it has changed my life for the good. I wasn't always the "poster child" for diabetes, but my daughter's diagnosis has flipped the script in my life. I do care about diabetes and am now focused on finding her cure.
T1D has also led to many great friendships and relationships. Not exactly how I would like to meet people, but I know that I may have never crossed paths with these people if diabetes was not the common denominator. These people have been so supportive and very unselfish with their time.
Diabetes has led us to JDRF. JDRF is by far one of the best organizations around. What I like about JDRF is the personal connection that the staff makes with each and every person with diabetes. I like that their focus is on the cure, prevention and treatment of T1D. I like that with their fundraising efforts, 82.5% of every dollar raised goes directly to funding research, which is a leader amongst all organizations when it comes to efficiency.
Yes I am thankful for a disease that is killing me slowly everyday. But while this disease destroys me from the inside, it has also made me a better person (or at least i think so).
Do I wish that we didn't have to "deal" with diabetes? Yes. That wasn't a choice we were given. God dealt us our cards, it is up to us to come up with the best hand to win. That doesn't happen if we look at those cards as a bad hand and fold. We don't have the option to fold. We will not fold.
Yes November is highlighted by the ever so popular holiday of Thanksgiving. Not many people know that November is National Diabetes Month. I mention this because it leads into what I am truly thankful for in this life that I am currently living.
I am thankful for having diabetes. More specifically, type 1 diabetes (T1D).
Why in the hell would someone be thankful for a disease that has no cure and will eventually end his life someday?
I think of it like this. By me having T1D, maybe I took the place of some child having this disease. Being an adult, even though it is still very difficult, I am better equip to battle this disease. Many of you have heard me say that I wish that just me having this disease would have filled the quota for diabetes in our household. Unfortunately, that wasn't the case. I am also thankful for this disease because I feel as if it has changed my life for the good. I wasn't always the "poster child" for diabetes, but my daughter's diagnosis has flipped the script in my life. I do care about diabetes and am now focused on finding her cure.
T1D has also led to many great friendships and relationships. Not exactly how I would like to meet people, but I know that I may have never crossed paths with these people if diabetes was not the common denominator. These people have been so supportive and very unselfish with their time.
Diabetes has led us to JDRF. JDRF is by far one of the best organizations around. What I like about JDRF is the personal connection that the staff makes with each and every person with diabetes. I like that their focus is on the cure, prevention and treatment of T1D. I like that with their fundraising efforts, 82.5% of every dollar raised goes directly to funding research, which is a leader amongst all organizations when it comes to efficiency.
Yes I am thankful for a disease that is killing me slowly everyday. But while this disease destroys me from the inside, it has also made me a better person (or at least i think so).
Do I wish that we didn't have to "deal" with diabetes? Yes. That wasn't a choice we were given. God dealt us our cards, it is up to us to come up with the best hand to win. That doesn't happen if we look at those cards as a bad hand and fold. We don't have the option to fold. We will not fold.
Thursday, November 1, 2012
New Beginnings....Well...Kind Of
Today is National T1D (type 1 diabetes) Day. It's not really a day to celebrate. Let's be honest, diabetes sucks and who wants to celebrate that shit. It's more of a day in which we think about those that live with type 1 diabetes and honor those people for being courageous. We think about those that have lost their battle with T1D and unfortunately will never get to experience what it will be like when we find the cure. Today, we spent the day thinking about new beginnings....well...kind of.
Heather and I have made the decision to switch Micheala's insulin pump. After doing some research, we found an insulin pump that will better fit her needs. Her old insulin pump was fine, but we needed more. We needed something to help us better control the roller coaster that is her blood sugars. Our new insulin pump has a built in CGM (Continuous Glucose Monitor). The new feature will alarm us when her blood sugars are getting too high or getting too low. It will even warn us if her blood sugars are starting to rapidly trend up or down. This feature will help us give her insulin or back off on insulin before she either gets too high or bottoms out. Basically takes a lot of the guessing game out of the equation.
Meeting with the pump rep was like starting all over again. We had to learn about the insulin pump, just like when we started the other pump over 3 years ago. Micheala went through the same anxiety with this pump, as she did when starting her other pump. We had to bribe her to put in her new sites and she resisted and cried in fear. Eventually she was brave and allowed us to insert the new pump sites.
Even at 7 years old, I hate to see Micheala scared. I saw a fear in her eyes that I haven't seen in quite awhile. Someone who has been so brave over the past 3 years with her diabetes, was once again scared. She just didn't want to hurt. As parents, we knew that this was the best for her and had to be strong, but tears the size of beach balls coming from her eyes did not make being a Dad very easy for me.
Today marks the first day of us battling diabetes with better equipment and I am looking forward to finally have an upper hand.
This morning at work, I decided that I had enough of this damn disease. My daughter can't even trick-or-treat without her blood sugars dropping to 40. We walk a short route (to prevent getting too much candy) and didn't even make it half way before we had to stop and load Micheala up with sugar. I ended up carrying her the rest of the way. Happy Halloween Micheala. Sure is a lot of fun trick-or-treating from your dad's shoulders. Micheala was up a couple times last night because her blood sugars got down to 40 again. At one point she started "hallucinating" and though we had monkeys outside our window. She also was saying that she couldn't move her hands. She was alright, but left us scared because of how low her sugars were...on Halloween of all days.
Sleep deprived, Heather and I continue to fight through our days. We want nothing more than a full 8 hours of sleep, but know that those days are behind us and have been for the past 3 years. We work full time jobs during the day and spend our evenings working the night shifts with Micheala. I am tired of this disease.
It's days like today that I question "why"? What did my daughter do to deserve this? This is when I get stuck in my negative space and start feeling sorry for Micheala and our family. Over the years I have learned to erase the question of "why me" from my thoughts and start asking questions like "what am I going to do to change this"? However, I feel like we are entitled to a day or so in which we grumble and hate the situation that we live in.
Tonight, I am now thinking about how to change the world that Micheala currently lives in. How do I erase the nights like we had tonight and get rid of the insulin supply cabinet that serves as an eye sore in our living room. I dream of those nights in which I can lay my head on my pillow and not worry. I dream of the days when I don't have to call and talk to a family that has been newly diagnosed. I long for the days that the school nurse and us do not have to be best friends based on my daughters disease.
Some of you reading this may have big hopes and dreams for your kids like being successful business men or women, sports stars or even just finding their soul mate and starting a family. My dream is that my kid doesn't have to suffer from this disease anymore. I can't see the future, but I can look into her eyes and see that she is going to be someone special when she gets older, because at the age of 7, she already is someone special.
So for today, I'm telling diabetes to piss off! Tomorrow it's new beginnings...well..kind of...it's more like back to fighting the good fight.
Heather and I have made the decision to switch Micheala's insulin pump. After doing some research, we found an insulin pump that will better fit her needs. Her old insulin pump was fine, but we needed more. We needed something to help us better control the roller coaster that is her blood sugars. Our new insulin pump has a built in CGM (Continuous Glucose Monitor). The new feature will alarm us when her blood sugars are getting too high or getting too low. It will even warn us if her blood sugars are starting to rapidly trend up or down. This feature will help us give her insulin or back off on insulin before she either gets too high or bottoms out. Basically takes a lot of the guessing game out of the equation.
Meeting with the pump rep was like starting all over again. We had to learn about the insulin pump, just like when we started the other pump over 3 years ago. Micheala went through the same anxiety with this pump, as she did when starting her other pump. We had to bribe her to put in her new sites and she resisted and cried in fear. Eventually she was brave and allowed us to insert the new pump sites.
Even at 7 years old, I hate to see Micheala scared. I saw a fear in her eyes that I haven't seen in quite awhile. Someone who has been so brave over the past 3 years with her diabetes, was once again scared. She just didn't want to hurt. As parents, we knew that this was the best for her and had to be strong, but tears the size of beach balls coming from her eyes did not make being a Dad very easy for me.
Today marks the first day of us battling diabetes with better equipment and I am looking forward to finally have an upper hand.
This morning at work, I decided that I had enough of this damn disease. My daughter can't even trick-or-treat without her blood sugars dropping to 40. We walk a short route (to prevent getting too much candy) and didn't even make it half way before we had to stop and load Micheala up with sugar. I ended up carrying her the rest of the way. Happy Halloween Micheala. Sure is a lot of fun trick-or-treating from your dad's shoulders. Micheala was up a couple times last night because her blood sugars got down to 40 again. At one point she started "hallucinating" and though we had monkeys outside our window. She also was saying that she couldn't move her hands. She was alright, but left us scared because of how low her sugars were...on Halloween of all days.
Sleep deprived, Heather and I continue to fight through our days. We want nothing more than a full 8 hours of sleep, but know that those days are behind us and have been for the past 3 years. We work full time jobs during the day and spend our evenings working the night shifts with Micheala. I am tired of this disease.
It's days like today that I question "why"? What did my daughter do to deserve this? This is when I get stuck in my negative space and start feeling sorry for Micheala and our family. Over the years I have learned to erase the question of "why me" from my thoughts and start asking questions like "what am I going to do to change this"? However, I feel like we are entitled to a day or so in which we grumble and hate the situation that we live in.
Tonight, I am now thinking about how to change the world that Micheala currently lives in. How do I erase the nights like we had tonight and get rid of the insulin supply cabinet that serves as an eye sore in our living room. I dream of those nights in which I can lay my head on my pillow and not worry. I dream of the days when I don't have to call and talk to a family that has been newly diagnosed. I long for the days that the school nurse and us do not have to be best friends based on my daughters disease.
Some of you reading this may have big hopes and dreams for your kids like being successful business men or women, sports stars or even just finding their soul mate and starting a family. My dream is that my kid doesn't have to suffer from this disease anymore. I can't see the future, but I can look into her eyes and see that she is going to be someone special when she gets older, because at the age of 7, she already is someone special.
So for today, I'm telling diabetes to piss off! Tomorrow it's new beginnings...well..kind of...it's more like back to fighting the good fight.
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